Rare skin diseases in Newborn

Our guest post today is from Alicia, mom to Efrain, who is 6 months old.

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Efrain was born via C-section on May 22, 2012 at 33 weeks, 1 day. Eleven days before, my water broke and I was hospitalized for monitoring. The doctors wanted to deliver the baby at 34 weeks, but the baby had enough after 11 days. Despite being on IVs and drinking as much as possible, I had no amniotic fluid. Efrain was in distress. His heart rate was dropping and they did not want to put us at risk for infection, so doctors told me on the morning of May 22 that I was going to be a mommy.

I wanted a normal delivery, without pain medication. The doctor said it was too risky to provoke labor, so a C-section was the only option we had. I was scared at first but my boyfriend was more worried than I was. I was just ready to see our little bundle of joy. I remember my mom, aunt, older sister and boyfriend were in the labor and delivery room with me most of the day. Each of them took turns to keep me company throughout the day. I was told that Efrain might have trouble breathing and crying, so there would be an emergency team in the operating room.

At 8 p.m., the nurses prepped me for surgery. I changed into a different gown and my mom braided my hair. I remember going into the operating room and shaking, mainly because of the spinal anesthesia. I am not afraid of needles; it was more that the anesthesia meant I was nearly done with my pregnancy journey. I was sad because I loved my big belly, but I was ready to see my little boy. At 8:42 p.m. Efrain was born with the loudest cry I’ve ever heard. He was born weighing in at 5lbs 1oz, measuring 18in. long.

As soon as I heard him cry, I cried and looked over at my boyfriend who also had tears in his eyes. He was holding my hand and smiling at me and said I did a good job. I saw a group of doctors that consisted of two neonatologists, a cardiac and respiratory team, and a few nurses surrounding my baby, as I had been warned. He didn’t have the respiratory problem they expected, but he did need to be rushed to the NICU for something else, something unexpected. It was something that changed my life, my boyfriend’s life and those involved forever.

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