US Conference Rare diseases orphan Products

NBIA Alliance members will present a poster on TIRCON and the NBIA Alliance at the European Conference on Rare Diseases & Orphan Products in Berlin. The conference is from May 8-10 and the poster will be presented on Friday, May 9.

The poster will highlight the main objectives of the Alliance to increase awareness of NBIA among the health care community by translating scientific data into patient-friendly clinical knowledge and to support collaborative research. The poster presents the launch, development, goals, activities, constraints and future options of the NBIA Alliance. It will also underline the role of TIRCON in the mutual empowerment of the NBIA patients’ movement and the NBIA research and care community.

In addition to attending ECRD 2014 and presenting a poster, the NBIA Alliance members will have a separate meeting on Saturday, May 10, to discuss strategic planning for the future work of the Alliance.

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