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Panellists at Pharmexcil's 10th annual meet propose to set up resource group ..  — pharmabiz.com
.. from Chandigarh, have not only discussed the various issues prevailing in India with regard to rare diseases and orphan drugs, they have also proposed solutions for the same and as an initial step they have agreed to set up a resources group on the ..

Popular Q&A

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Which European country has the best, cheapest health care system for an American with a rare disease? - Quora

As an American, not resident in Europe, you won't qualify for any of the national health/social security schemes that European nationals and residents enjoy.  So you'll have to pay out of pocket or via insurance.
Your best bet may well be the London Hospital for Tropical Diseases

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