Rare diseases Canada list

Canada is the first country in the Americas to launch an international Web portal designed to improve research and treatments for rare diseases, Health Data Management reports.

Portal Details

The international portal– called Orphanet– is led by a consortium overseen by the French National Institute of Health and Medical Research. The platform serves as an international online reference portal for data on rare diseases and contains information from:

  • Expert centers;
  • Medical laboratories;
  • Ongoing research; and
  • Patient organizations.

Canada’s Launch

The Canadian government, along with the Canadian Institutes of Health Research, worked to make the portal available in Canada.

According to Health Data Management, Canada is the first country in the Americas to connect to the data.

You might also like
Symptoms of Celiac Disease
Symptoms of Celiac Disease
What are the signs and symptoms of IPF?
What are the signs and symptoms of IPF?
Symptoms of Low Thyroid Disease
Symptoms of Low Thyroid Disease
MED-21. Spontaneous intramural small bowel hemorrhage: a rare complication of anti-coagulation.(Section on Internal Medicine): An article from: Southern Medical Journal
Book (Southern Medical Association)
ABC Good Morning America: Rare Eye Disease Diagnosed by
ABC Good Morning America: Rare Eye Disease Diagnosed by ...
Rare Eye Disease Diagnosed by Facebook User
Rare Eye Disease Diagnosed by Facebook User
Celiac Disease Symptom Checklist
Celiac Disease Symptom Checklist
Ebola Virus: Symptoms, Treatment and Prevention
Ebola Virus: Symptoms, Treatment and Prevention
Autoimmune Diseases List And Their Symptoms
Autoimmune Diseases List And Their Symptoms

Popular Q&A

avatar
Can settle in canada at sympathy basses as i m suffering from a rare disease and have no medication facility?

No.
In order to immigrate to Canada you must meet the requirements of one of the categories. Further, all immigrants are required to undergo medical exams. Any serious medical condition is likely to make you medically inadmissible to Canada.
There are hundreds of millions of sick people in the world who can't get medical treatment in their home countries. Nearly half the population of the planet doesn't have access to western medical treatment.

Related Posts