List of rare diseases in us

List of rare diseases in us

Even though Rare Disease Day 2014 is over, many of these activities are on-going or might inspire you to start planning for 2015! We want to encourage everyone to get involved and participate…
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NORD list for rare disease

NORD list for rare disease

Supporters of Rare Disease Day USA will celebrate for the fourth year in a row in the United States, this time on Leap Day, February 29. The day of advocacy is designed to promote awareness…
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Rare diseases list and Pictures

Rare diseases list and Pictures

Necrotizing fasciitis is term which refers to a disorder that causes the damage and death of tissues. It is the result of rapid spread of infection which is usually located in the fascial regions of connective tissues. It is a rare disease , but can affect…

Rare deadly diseases list

Rare deadly diseases list

Viruses can cause many dangerous diseases in humans. Photo Credit There are many diseases that are dangerous to mankind. Whether they are incurable, chronically lethal or acutely deadly, certain illnesses have dire affects when humans are infected. Viruses…

Rare diseases disorders list

Rare diseases disorders list

What is Rare Disease Day? The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public but it is…

List of rare muscle disease

List of rare muscle disease

Photo Credit Photodisc/Photodisc/Getty Images Muscle pain, muscle weakness and paralysis can be signs of serious muscular problems. MedlinePlus says that muscle disorders can occur as a result of injury, overuse, infections, medications, genetics and…

Rare disease called rickets

Rare disease called rickets

Familial hypophosphatemic rickets, Vitamin D-resistant rickets What X-linked hypophosphatemic rickets (XLH), also known as Familial hypophosphatemic rickets, or vitamin D-resistant rickets is a rare genetic disorder characterized by low levels of the…

Rare diseases list in the Philippines

Rare diseases list in the Philippines

Senator Cynthia Villar on Tuesday said the government should tap collections from sin taxes to fund research and information initiatives for the treatment and management of rare diseases. Senate Bill 2279, filed by Villar, seeks to direct provisions from…

Rare neuromuscular diseases list

Rare neuromuscular diseases list

Below is a general overview of the characteristics of the neuromuscular diseases that affect children and teens. The disorders are grouped into six categories. Muscular dystrophies (involving the structure of the muscle cells) Becker (BMD) • Age of onset:…

List of orphan diseases in India

List of orphan diseases in India

Though the percentage of patients suffering from ‘rare diseases’ in India is reportedly higher than the world average, even today such cases get little help from our government. Here’s why new regulations should be brought in place for treating orphan…

Top 10 rare diseases list

Top 10 rare diseases list

Here is a list of 10 diseases that rarely affect people: Water allergy: Water allergy disease is very rare and is affected only 30 individuals till date. This kind of disease causes skin to become unbearably itchy and burning after exposure to water…

List of rare heart diseases

List of rare heart diseases

TUESDAY, March 24 (HealthDay News) — A rare genetic heart disorder called Danon disease progresses rapidly and is often deadly in young people, according to a new study. The recently recognized disease is a type of cardiomyopathy, or heart muscle disorder…

Orphan diseases list European

Orphan diseases list European

The 6th European Conference on Rare Diseases and Orphan Products was a resounding success gathering close to 700 people on 24-25 May in Brussels, to further promote rare diseases in the health and research policy agendas of the EU and Member States. The…

Orphan diseases list NIH

Orphan diseases list NIH

Rare comes from the Latin rarus (loosely spaced or sparse) and eventually from the putative Indo-European root ERE, denoting separation, as in hermits and eremites and the net-like structures rete, retinaculum, and retina. Orphan comes from the Greek…

Rare diverticular disease

Rare diverticular disease

Many health-conscious men can recite their cholesterol counts, blood pressure readings, and PSA levels without even glancing at their medical records. But few of these well-informed gents can tell you if they have diverticular disease of the colon, even…

Rare genetic disorders in animals

Rare genetic disorders in animals

John Forman is a dedicated if unconventional New Zealand activist, but his cause is one which is putting him at odds with the more vocal and occasionally militant end of the Kiwi activist spectrum – anti-GM campaigners and those who protest against animal…

List of rare diseases and Syndrome

List of rare diseases and Syndrome

Enter your requested disease name, gene symbol, or code depending on your selection in the query zone and click OK to validate. You may use truncated names. A list of all diseases or genes matching your query will appear. Select the one of interest to…

List of rare small intestine diseases

List of rare small intestine diseases

Infections of this type may only last a short time, but can be present for long periods before a person has symptoms. As the major function of the small intestine is to digest, absorb and propel food along its length, most clinically important infections…

List of rare diseases UK

List of rare diseases UK

Genetic Alliance UK s initiative Rare Disease UK (RDUK) has secured the Highly Commended award in the Payers/Policymakers category at the Communiqu Awards 2014. The high commendation was received for RDUK s successful campaign to secure a UK Strategy…

Rare incurable diseases list

Rare incurable diseases list

9. Water Allergy Also known as Aquagenic Urticaria, this disease is extremely rare and has affected only 30 people till date. Water Allergy is a disease confirmed by Medical Review Board where sufferers are allergic to water. Mostly it occurs in the latter…

Rare disease Day list of diseases

Rare disease Day list of diseases

Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and by National Alliances and Patient Organisations at the national level. The main objective of Rare Disease Day is to raise awareness amongst…

Australian rare diseases Network

Australian rare diseases Network

Patient organisations in Australia have engaged in Rare Disease Day since 2009, hosting many exciting events to raise awareness amongst the general public, including a Fun Run and Walk, BBQ fundraisers and forums to improve understanding of rare diseases…

Rare diseases Day Australia

Rare diseases Day Australia

Go their website to learn more about any of the items below. In the September issue: National Rare Diseases Plan Life Saving Drugs Program (LSDP) Post Market Review RVA and Pharmaceutical Industry 3rd Round Table Meeting 26th August 2013 ‘Don’t Stop Research…

List of rare diseases in Australia

List of rare diseases in Australia

Only one child, whose parent had been diagnosed with the same disorder, was diagnosed before birth. Two (7%) children were diagnosed at birth, 9(30%) before 12 months of age, 9(30%) between 12 months and 3 years of age, and 9(30%) at 4 years of age or…